Other Sources for Statistics
For additional statistical information on kidney diseases, please contact the following organizations:
American Urological Association Foundation
1000 Corporate Boulevard
Linthicum, MD 21090
Phone: 1-866-RING-AUA (746-4282) or 410-689-3700
Fax: 410-689-3800
Email: patienteducation@auafoundation.org
Internet: www.auafoundation.org 
www.UrologyHealth.org 
American Society of Nephrology (ASN)
1725 I Street NW, Suite 510
Washington, DC 20006-2403
Phone: 202-659-0599
Fax: 202-659-0709
Email: sleventhal@asn-online.org
Internet: www.asn-online.org
American Urological Association (AUA)
1000 Corporate Boulevard
Linthicum, MD 21090
Phone: 866-RING-AUA
Internet: www.auanet.org 
Center for Medicare and Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244
Phone: 1-800-633-4227 (Medicare) - Patients
Phone: 410-786-3000 (Main Switchboard)
Internet: www.cms.hhs.gov
Centers for Disease Control and Prevention (CDC)
1600 Clifton Road, NE.
Mail Stop G37
Atlanta, GA 30333
Phone: 404-639-3311 (public inquiries)
Internet: www.cdc.gov
Interstitial Cystitis Association (ICA)
51 Monroe Street, Suite 1402
Rockville, MD 20850
Phone: 1-800-HELP-ICA (435-7422)
Phone: 301-610-5300
Fax: 301-610-5308
Email: icamail@ichelp.org
Internet: www.ichelp.org 
National Association for Continence (NAFC)
P.O. Box 8310
Spartanburg, SC 29305-8310
Phone: 1-800-BLADDER (252-3337)
Phone: 864-579-7900 (business office)
Fax: 864-579-7902
Internet: www.nafc.org 
National Center for Health Statistics
Presidential Building, Room 1064
6525 Belcrest Road
Hyattsville, MD 20782-2003
Phone: 301-458-4636
Internet: www.cdc.gov/nchs
CDC Growth Charts: United States: www.cdc.gov/growthcharts
National Kidney Foundation (NKF)
30 East 33rd Street
New York, NY 10016
Phone: 1-800-622-9010
Phone: 212-889-2210
Fax: 212-689-9261
Email: info@kidney.org
Internet: www.kidney.org 
Polycystic Kidney Disease Foundation
4901 Main Street, Suite 200
Kansas City, MO 64112
Phone: 1-800-PKD-CURE (753-2873)
Phone: 816-931-2600
Fax: 816-931-8655
Email: pkdcure@pkdcure.org
Internet: www.pkdcure.org
The Simon Foundation for Continence
P.O. Box 815
Wilmette, IL 60091
Phone: 1-800-23-SIMON (237-4666)
Phone: 847-864-3913
Fax: 847-864-9758
Email: simoninfo@simonfoundation.org
Internet: www.simonfoundation.org 
Transplant Recipient International Organization (TRIO)
1000 16th Street, NW., Suite 602
Washington, DC 20036-5705
Phone: 1-800-TRIO-386 (874-6386)
Phone: 202-293-0980
Fax: 202-296-0973
Email: trio@mindspring.com
Internet: www.trioweb.org 
United Network for Organ Sharing (UNOS)
1100 Boulders Parkway,
Suite 500
P.O. Box 13770
Richmond, VA 23225
Phone: 804-330-8500
Fax: 804-330-8507
Internet: www.unos.org
United States Renal Data System (USRDS) Coordinating Center
914 South 8th Street, Suite D206
Minneapolis, MN 55404
Phone: 1-888-99-USRDS (998-7737)
Phone: 612-347-7776
Fax: 612-347-5878
Internet: www.usrds.org 
Page last updated: September 2, 2010







