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Home : About NKUDIC : Research Updates : Kidney Disease Fall 2009

 

Kidney Disease Research Updates
Fall 2009

NKDEP Report Summarizes Accomplishments, Future Goals

Photograph of the new National Kidney Disease Education Program report "Reducing Disparities. Improving Care."

The National Kidney Disease Education Program (NKDEP) has issued a report summarizing its activities, accomplishments, and future goals. Established in 2000, this National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)-sponsored program plans to expand its work educating health care providers, individuals, and communities about chronic kidney disease (CKD).

"As more and more Americans are affected by CKD—due in part to rising rates of diabetes and high blood pressure—NKDEP's charge becomes even more important," wrote NIDDK Director Griffin P. Rodgers, M.D., M.A.C.P., who prefaced the report.

CKD prevalence in the United States has grown 20 to 25 percent over the past 10 years, according to the report. About 23 million Americans have CKD, which disproportionately affects minorities. African Americans are four times more likely than Caucasians to develop kidney failure. Hispanics/Latinos with kidney failure have increased 65 percent since 1996.

Costs for CKD care take a heavy financial toll on health care systems; a staggering 25 percent of Medicare patients have CKD.

CKD most often results from diabetes and high blood pressure, and CKD can lead to kidney failure, requiring renal dialysis or kidney transplantation. Although treatment cannot reverse CKD damage, it can greatly slow its progression.

Education

Education is the NKDEP's chief strategy to reduce CKD-related morbidity and mortality. "Many of the therapeutic interventions for CKD are similar to those required for optimal diabetes care," according to the report. But unlike diabetes, which is frequently managed by primary care providers, CKD is too often treated as a "specialist" disease. As a result, primary care providers tend to "defer treatment prior to subspecialty referral, missing opportunities for early treatment."

The NKDEP develops tools that can be used in the primary health setting to detect early CKD and slow its progression. The NKDEP’s Explaining GFR Tear-off Pad, which has been translated into Spanish, Chinese, and Vietnamese, helps care providers explain GFR, or glomerular filtration rate—a measure of kidney function—to patients. Understanding GFR and knowing how to interpret the results are critical first steps in initiating kidney-saving therapies and lifestyle changes.

The NKDEP works with communities to raise CKD awareness. Targeting African American communities, the NKDEP toolkit Family Reunion Health Guide helps get the word out about CKD at family events. The NKDEP also works with African American churches through its Kidney Sundays program, which provides talking points to help ministers educate their congregations about CKD.

Community health centers (CHCs)—where much of the CKD at-risk population gets care—are crucial NKDEP partners. The NKDEP’s 2008-initiated Community Health Center-CKD pilot program is developing strategies to help CHCs incorporate CKD care into their practices. The pilot program arms providers with CKD resources and expertise to help patients become more proactive in their own care. Short web videos, for example, were produced by the NKDEP to model provider-patient discussions about CKD.

Going forward, the NKDEP plans to expand its portfolio of CKD patient and provider education materials, its work with CHCs, and CKD programs aimed at diabetes educators, clinical pharmacists, nurse practitioners, and dialysis center staff.

To read the summary report, titled Reducing Disparities. Improving Care., visit the NKDEP website at www.nkdep.nih.gov.

The NIDDK has information about CKD. For fact sheets and easy-to-read booklets, visit www.kidney.niddk.nih.gov.

 

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NIH Publication No. 10–4531
October 2009

  

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